Understanding Sudden Unexpected Infant Death (SUID): Statistics, Prevention, and Resources for Parents

Thrive • October 11, 2021
By Thrive Reno’s Director of Perinatal Psychiatry, Andrea Thompson, APRN, FNP-C, PMHNP-BC

The thought of the sudden loss of an infant may sound unfathomable and also uncomfortable to discuss. That being said, about 3,400 babies in the United States die suddenly and unexpectedly each year. Given this statistic, it is important we arm ourselves with knowledge and provide appropriate support in our communities for parents. 

WHAT IS SUDDEN UNEXPECTED INFANT DEATH (SUID)?

Sudden unexpected infant death (SUID) is a term used to describe the sudden and unexpected death of a baby less than one-year-old in which the cause was not obvious at the time of death. These deaths often occur during sleep or in the baby’s sleep area. 

There is some overlap in the ways that SUIDs are classified. That being stated, the three most commonly reported types of SUID are:

  • Sudden infant death syndrome (SIDS ) : A type of SUID that is characterized by the sudden death of a seemingly healthy baby under one year of age which remains unexplained after an investigation. According to the Safe to Sleep campaign led by the National Institutes of Health , “SIDS is the leading cause of death among babies between one month and one year of age.” For this reason, October is SIDS Awareness Month in the United States.
  • Suffocation: May be caused by choking, constriction of the chest or abdomen, strangulation, narrowing of airway passages due to an allergic reaction or reactive airway disorders, or the inhalation of toxic gases. In most cases of sleep-related infant deaths, it is impossible to determine whether to classify it as SIDS or accidental suffocation.
  • Unknown cause of death: Another way that investigators may classify a SUID after all other causes have been ruled out. 

Although the SUID rate has declined since the 1990s, there are significant racial and ethnic differences to consider as rates vary between American Indian, non-Hispanic Black, and non-Hispanic White infants. 

HOW TO PREVENT SUIDs

There are several things to consider to mitigate the risks of SUIDs. The American Academy of Pediatrics recommends ‘back to sleep’ which involves placing the baby on their back for every sleep. Other recommendations include using a firm sleep surface, room-sharing with infants on a separate sleep surface, keeping objects away from an infants’ sleep area, and considering a pacifier at naptime. It is also recommended to breastfeed if that is what the parents choose. Finally, avoiding smoking or alcohol use is another safety measure to consider. 

Parents should seek regular prenatal and postnatal care and discuss recommended immunizations with their child’s pediatrician or healthcare provider. Additionally, even though the marketing may be appealing, using cardiorespiratory monitors for sleep is not recommended. Supervised tummy time while awake can also help facilitate the baby’s development and mitigate the risk of SUID. Most of all, be sure to discuss concerns and recommendations with your pediatrician or family health care provider.  

RESOURCES FOR GRIEVING PARENTS

The loss of a child may never become easier to manage, but with time and the right support, parents and families may find new ways to cope. If parents find themselves experiencing the loss of a child, the MISS Foundation offers counseling, support groups and resources for those grieving. Thrive Reno also offers a complimentary Perinatal Loss and Grief Support Group and an “It Takes a Village” perinatal Day Program . Additionally, both Thrive Reno and Thrive Waco offer various perinatal mental health outpatient services

FURTHER READING

For more information about SUIDs, you may consider visiting the following sources which also served as references for this blog post. 

ABOUT THE AUTHOR

​​Andrea Thompson, APRN, FNP-C, PMHNP-BC — Thrive Reno’s Director of Perinatal Psychiatry

Andrea Thompson, APRN, FNP-C, PMHNP-BC is a Nurse Practitioner whose background has stemmed in primary care, primarily working with under-served and under-insured populations. After several years in family practice, she completed a Post Master’s certification as a Psychiatric Mental Health Nurse Practitioner. In early 2019, she started a program the first of its kind in Northern Nevada to integrate mental health services into a women’s health/OBGYN practice where she had a focus on perinatal mood and anxiety disorder diagnosis and treatment which solidified her passion for Perinatal/Reproductive Psychiatry. She has also completed certificate training with Postpartum Support International. As a postpartum depression survivor herself, she has a passion for helping other women throughout their journey to mental wellness. She and her husband moved to the Reno area several years ago from Seattle, WA to settle into a place to raise their family; they have three young boys. Aside from spending time with her family outdoors, Andrea is also active in the efforts to improve the sexual health education offered to the youth in our community as well as advocating at the state level to support Nurse Practitioner autonomy and Maternal Mental Health.

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When Emma was 8, her parents noticed her food choices shrinking. At first, they assumed it was just picky eating — “She’ll outgrow it,” friends said. But by 10, Emma would only eat crackers, cheese, and chicken nuggets. Family dinners became nightly struggles, her growth slowed, and she skipped birthday parties to avoid “strange food.” Her parents felt powerless, her brother grew frustrated, and outings dwindled. What began as food avoidance soon reshaped the rhythm of the entire household. When children avoid food, most parents expect it’s a passing stage. But when restriction deepens, shrinks to only a few “safe foods,” and begins affecting growth or health, families suddenly find themselves in unfamiliar territory. This is often where Avoidant/Restrictive Food Intake Disorder (ARFID) emerges — with effects that extend far beyond the plate. As providers, we need to be attuned to these patterns. It’s tempting to dismiss them as “no big deal,” yet for many families, they are life-altering. Sadly, Emma’s story is not unusual. Mealtimes as Battlegrounds Families living with ARFID often describe mealtimes as emotionally charged, exhausting, and unpredictable. What should be a chance to connect around the table can feel more like a negotiation or even a standoff. Parents wrestle with whether to push their child to try a new food or give in to the same “safe foods” again and again to avoid tears, gagging, or complete meltdowns. This ongoing tension can make mealtimes dreaded rather than cherished. Siblings, too, are affected. Some may feel resentful when family meals are limited to what only one child will tolerate. Others may act out in response to the constant attention the child with ARFID receives. Over time, the dinner table shifts from a place of nourishment and bonding into a stage for conflict, anxiety, and guilt — a pattern that can erode family cohesion and resilience. Social Isolation and Missed Experiences ARFID impacts more than what happens at home; it influences how families engage with the world around them. Everyday events — birthday parties, school lunches, vacations, even extended family dinners — become sources of stress. Parents may pack special foods to avoid confrontation or, in many cases, decline invitations altogether to protect their child from embarrassment or overwhelm. This avoidance can lead to an unintended consequence: isolation. Families miss out on milestones, friendships, and traditions because of the unpredictability surrounding food. The child may feel left out or ashamed, while parents grieve the loss of “normal” family experiences. This social withdrawal can compound the anxiety already present in ARFID and deepen its impact across generations. Emotional Toll on Parents The emotional strain on parents navigating ARFID is significant. Many describe living in a constant state of worry — Will my child get enough nutrients? Will they ever grow out of this? Am I doing something wrong? This worry often spirals into guilt and self-blame, particularly when outside voices dismiss the disorder as mere “picky eating.” In addition, the pressure to “fix” mealtimes can strain marital relationships, creating disagreements over discipline, feeding strategies, or medical decisions. Parents may also feel emotionally depleted, pouring all their energy into managing one child’s needs while inadvertently neglecting themselves or their other children. Without support, this chronic stress can lead to burnout, depression, and disconnection within the family system. The Role of Providers For clinicians, ARFID must be viewed not only as an individual diagnosis but as a family-wide challenge. Effective care requires attention to both the clinical symptoms and the family dynamics that shape recovery. Parent Support: Educating caregivers that ARFID is not their fault, offering psychoeducation, and helping them reframe mealtime struggles as part of the disorder — not a parenting failure. Family-Based Interventions: Coaching families in structured meal support, communication strategies, and gradual exposure work so parents don’t feel powerless. Holistic Care: Involving therapists, dietitians, occupational therapists, and medical providers ensures that the family does not shoulder the weight of treatment alone. When families are validated, supported, and given practical tools, the entire household can begin to heal. Treatment is not only about expanding a child’s food repertoire but also about restoring peace, resilience, and connection at home. Moving Forward ARFID may begin with one individual, but its ripple effects are felt across the entire family system. By addressing both the psychological and relational dimensions, providers can help transform mealtimes from a source of conflict into an opportunity for healing and connection. For those who want to go deeper, we invite you to join our upcoming training on ARFID , where we will explore practical strategies for supporting both clients and their families.
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